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A couple of questions

Neuroendocrine Tumors (NETs) | Last Active: Jul 27, 2025 | Replies (3)

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Profile picture for iverwig @iverwig

I can’t say for sure if NET’s cause pain but from personal experience I will say yes. I don’t recall asking my oncologist about it directly although I have mentioned the pain at previous appointments. I have had a reoccurrence of my NET and this time it’s in my right lung. I have had an occasional dull pain in my lower right rib area.

I can say when I first was diagnosed with NET in my thymus a couple years ago the one thing that made me get checked out was a squeezing pain I had in that area. I waited months before I ever said anything as the pain would come and go sometimes being more intense than others. When I had the NET in my thymus it was a sharp squeezing pain. In my right lung it’s been more of a dull pain.

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Replies to "I can’t say for sure if NET’s cause pain but from personal experience I will say..."

Interesting. I get all that. And totally understand waiting to get it checked because it's so random. I've been telling my team from the start my lower left ribs hurt. They don't think it's related to NETs. At first they told me I might have thymus involvement but that didn't check out. How did they treat your thymus tumor and how long before you got another tumor in your lung? Will it need treatment soon or still in watch and wait mode?