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DiscussionRheumatoid arthritis: How do you cope day to day?
Autoimmune Diseases | Last Active: 18 hours ago | Replies (82)Comment receiving replies
Replies to "Explain to me the way or what medication to take for this pain I'm having. Please...?..."
Did you check into foods you eat? See what is good for this like raw cherries, ginger etc. Drink the right amount of water for your weight makes a difference. I hope you find relief.
I am in my mid-60s and started this journey with a synovectomy of my right knee after my third child in 1998.
It’s a challenging Road!
I’ve been on a great deal of medications. Plaquinel first, then methotrexate. Nothing right now.
What I found to be helpful is compression gloves that you can order on Amazon as well as KT athletic tape. You can watch a YouTube on how to apply correctly or ask your Physical Therapist.
I also have lower arm compression sleeves.
At night I go to sleep with my arms in the soft hand to wrist holders that keep me from bending my wrists into weird positions that might hurt me in the morning.
I also love using ice. They have soft packs that conform to your body. The rule is to put it on for 10 minutes with cheese cloth or thin towel between the ice pack and your skin. 10 minutes off, then you can do another 10 minutes on.
So ice and compression! Compression gloves, compression sleeves, and KT athletic tape, which you may have seen the Olympians wearing at the Summer Olympics! KT athletic tape is similar to duct tape, but for the body.
Asked to go to Physical Therapy and occupational therapy because they have lots of tricks of the trade!
Swim! Keep walking! Movement is medicine to our joints! Hopefully, you’ll get out of this exacerbated state soon and into remission! Praying for you! Kay🌺
I’m so sorry you are going through this!! It’s a lot! Your story sounds VERY similar to mine. I’ve always been such a hard worker. Could work circles around most men, lift more than most men and all of the sudden…..now my joints, my knuckles, my feet, my toes, my shoulders…. I’m 53 and fear for my future. I’m gonna be in a wheelchair. My feet feel like they are breaking when I walk. Some days I can barely move. I have Fibromyalgia-autoimmune disease. Chronic inflammatory. I have Bladder Pain Syndrome (interstitial cystitis) and Lichen schlerosis and these joints and muscles!!! The absolute worst! And so scary! I have found that lidocaine patches work very well for me. Magnesium cream on my feet with socks, on my hands with compression gloves, Aleve, Tumeric with curcumin, following an anti inflammatory diet does help. Drink lots of water. Voltaren cream is VERY VERY helpful. Epsom salt baths, Omega 3, Quercetin, Magnesium Glycinate, Vitamin D, Matcha tea, Tumeric Tea, Ginger Tea, Chamomile tea.
I feel for you! I really do! Some days are better than others that is for sure. Please lmk if I can help in any way. I’ll pray for you. May God bless you and bring you comfort
As I mentioned, I've had RA for 10 years and when I was first diagnosed, I was like you. The pain was out of control, and it scared me. What was I going to be like in 10 years?
The pain and deformity started in my feet with big bunions. I did my research and asked for a referral to a surgeon who told me that he wouldn't operate and that I needed to exhaust all other options: drugs, special footwear, a cane, physio, etc. I researched my Benefits plan in great detail and tried everything, even acupuncture. Some things helped and others didn't. Then my hands started to hurt. Compression gloves helped. Microwave heating pads are a life saver (and very portable). Through this time, I was also on Methotrexate, Plaquenil and a different Biologic every 6 months. I failed 5 Biologics until I tried a Jak Inhibitor (Rinvoq) which finally helped. By this time, my knees were involved. For a while I was still able to work but one night, when I had to crawl up the stairs (because I was unable to walk) I knew things were getting a lot worse. This was about 5 years in. The only thing that helped my pain was Prednisone and that was only a short-term fix. Even medical marijuana didn't help. In preparation for Bilateral Total Knee Replacements I was referred to Pain Management - a whole new world. My first pain clinic was scary. I'm a professional person and had never had a drug test in my life. Now I was treated like an addict and taking drugs like candy. One day Nucynta; the next day Gabapentin; the next day Amitriptyline. The one good thing that Pain Management did was prescribe Ozempic. I was overweight (partially because I was not exercizing because of the pain-bad excuse!) and partially because of the drugs I was on). I lost 50 pounds which made me feel better about myself and made the recovery from my TKRs much easier. Unfortunately, I'm one of the 15% who still have pain after TKR. The pain is from chronic tendonitis- common with RA. Back to Physio, Massage, and Osteo and drugs. Today, I have chronic tendonitis in both knees and my right shoulder. I get nerve ablation every three months for these. I also get trigger point injections every three weeks in my neck, shoulders, low back and hips. For pain, I am on a Butrans 10 patch, and I take Gabapentin, Nucynta, Plaquenil, Celebrex, Cymbalta, Zopiclone and a Prescription Pain Cream. On a side note, I've developed chronic (daily) migraines for which I take Botox, Topamax, Qulipta and Ubrelvy. Stress aggravates RA. We have to do everything we can not to stress. Are you familiar with Spoon Theory? I live by it. I also do Progressive Muscle Relaxation every day. I have also changed my diet. I'm gluten free, dairy free, alcohol-free, caffeine free and refined sugar free (yes, I cheat- a couple of times a year).
If you have questions, let me know. Be good to yourself!
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Wow! You are really going through it. If the pain is the hurt all over even when you are laying still kind then I would roccogmend Low Dose Naltrexone. I deals well with that with few side effects. Read about it first. And it might help your immune system.