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Linda, Awesome - thank you for sharing. This is good information, and I did find a surgeon at Duke and he works with Michael Morse, so that is reassuring. Is the LA surgeon you are referring to female and in New Orleans? If so, she may been at the conference I was at last week in Alabama. I never heard of Phillip, so thank you for sharing this with me, I will also look him up. I feel like I am losing my mind at times, so this is helpful. The tumor was biopsied on 5/14, came back malignant. Pet Scan was 5/29 which confirmed the SVU was 33 for the pancreas, and the T3 lit up too. That is the part I am freaking out about. It was < 2 well differiencted. It looks like I have a cyst on my liver but no mets in my liver, but I am praying it doesn't spread! Is it just a matter of time? I am not on meds, therapy nada. Just watching right now, until the scan.

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How are you feeling about things?