Hi Sue, welcome to connect. I had a single car accident on January 11 2024 and I was ok but docs said I should have that thing on my pancreas checked out.

I replied I know a surgeon. My wife just had a distal on Dec 1 2023 up at Mayo Rochester for pancreatic adenocarcinoma.

So on my wife’s 3 month check up in February is when things picked up for me. They suspected a PNET right away. I went through the testing that others have mentioned during the summer and my distal was scheduled for July 24.

Here’s what my surgeon said. We could watch it. It was 1.8 cm. But why. Take it out. And the spleen too, I didn’t question it. And the gallbladder too because if NETs came back the medicine you would take would have adverse reaction to the gallbladder so out it goes.

I had full open surgery as that gives the surgeon better insight as to the extent of the issues I was told. Since my wife had just gone through the same surgery I was not afraid.

I had no spread to 22 lymph nodes and margins came back clean and I was a number 3 so a low mildly aggressive cancer.

I’d at least schedule the surgery as that takes time too. My surgeon’s opinion was that there was no reason to wait.

I wish you all the best!

The fact that it takes time to work through everything I was already 6 mos after discovery. I had a PNET