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I was prescribed 15mg/day for my PMR. Even though I only took 10mg/day prednisone considering my 105LB body weight, I could not sleep for the first three days. So I had to reduced it to 5mg/day in order to get a few hours sleep every night. It took me 18 month to get out of prednisone. During those days, I always feel some discomfort, especially in the morning. I took some anti inflammatory supplements and always be mindful about what I eat.

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Replies to "I was prescribed 15mg/day for my PMR. Even though I only took 10mg/day prednisone considering my..."

I would say whether it was by luck or a educated effort but you treated your PMR exactly right. According to Dr Megan you should always move to your lowest helpful dose. Being on 5mg for 18months was not nearly as hard on you. Diet can play an important part. I think a large percent of us feel sort of immune fatigue even after being off prednisone. But could be old age. Good job on your journey through this. (:

Thank you for this detailed account. It’s quite striking how much medical knowledge …and fortitude…you had to acquire over the years. I’m inspired to lean in and try to do the same, as I begin my own PMR journey I’d never wish on anyone. So no apologies for the length! That’s what brings your narrative so vividly alive. Best of luck going forward.

What were the anti inflammatory supplements you took? Thanks.