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I'm stage 4, sadly, 4+3. I've been to the three best facilities for cancer in the country. I'm being treated at Sloan Kettering and got second opinions at Mayo and MD Anderson. They all gave me the same information on the treatment which is good. The end goal was to get radiation for the prostate and the hip where the cancer has gone.

Interesting is that my PSA was only 3.6 after being 1.7ish and that's what prompted the MRI. Less than a PSA of 4 is usually a wait and see thing. I was stage 4 at that point.

With me, before Lupron and abiraterone, they gave me an oral medication to shut the testosterone receptors of the prostate cancer down. Lupron will raise the testosterone levels in your body initially and that's why they gave me the first medicine, can't remember the name but starts with Bi ( I can find it if you want me to). You don't want to be feeding the cancer if you can help it.
I will be on Lupron and Abiraterone for a total of two years and if I make it that far, they will take me off of those and wait and see.

I'm currently completing my SBRT radiation treatment with 5 sessions for the prostate and three for the hip. The radiation isn't real bad. The first session of the prostate, I felt a burning down there and after subsequent sessions, Aleve seemed to fix things. The hip, I haven't felt anything after two sessions. The prostate sessions lasted about four-five songs on the music and the hip was two or three songs for each session.

If in doubt, or for the hell of it, go to the best place you can find to get a second or third opinion. For me, each opinion cost Medicare about $900 and i had to pay travel expenses.
Why did i get second and third opinions, because I didn't want to be on my death bed wishing I should have done more.

BTW, the second opinion idea came from people here in this web site and it was the best thing I could have done. Takes away all doubt of the treatment I was receiving.

Good luck and don't assume the doctors know everything,

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Replies to "I'm stage 4, sadly, 4+3. I've been to the three best facilities for cancer in the..."

That first pill you took was Biclutamide (Casodex) another one of the lutamides.😀

I actually took Biclutamide when I became castrate resistant. My oncologist had me take it for a year and it kept my PSA from rising much, Went on abiraterone after the year..