HFX/NEVRO Stimulator for Neuropathy

Posted by trustin356 @trustin356, Sep 19, 2024

I have had neuropathy for several years as well as back pain (result of back surgery (lumbar laminectomy) and have in the past gotten cortisone shots for the pain. The last time I went to my pain doctor, he recommended that I see a neurosurgeon to discuss a fairly new device specified for neuropathy and back pain.
I visited the neurosurgeon and he told me about the device. It is a spinal simulator with which they have also seen positive results for back pain and also for neuropathy. I agreed to try the device and a test was scheduled to attach a test device externally. I did the test for a week and the results were positive. About 90% of my back pain was gone and my neuropathy, although still there, was better.
Following the test period (one week), the neurosurgeon and I agreed that the device would work on my pain and I was scheduled for surgery to implant the stimulater in my lower back with leads attached to my back (epidural area).
I have had the implanted device for almost 2 months and have been trying (with help from the HFX coordinating team) to find the right setting on the device. I have experienced dome pain relief in my back but little to no relief in my feet. I am still working with the coordinating team to find the best setting.
Sorry this is long but I would like to know if anyone else has had experience with the device.
Thanks for any input!

Interested in more discussions like this? Go to the Neuropathy Support Group.

Has anyone tried Stonehenge Health Dynamic Nerve supplements for their feet neuropathy?

REPLY
Profile picture for dexxa928 @dexxa928

Has anyone tried Stonehenge Health Dynamic Nerve supplements for their feet neuropathy?

Jump to this post

REPLY
Profile picture for dexxa928 @dexxa928

This sounds exactly like my experience. I had a terrible herniated disk over 10 years ago. I had spine surgery in May 2015. I have never walked correctly since. I still have pain and take oral pain medication. I also have peripheral neuropathy as well. I take gabapentin daily. Nothing has really helped long term. The medications help to temporarily ease the pain. About 10 months ago, I had a spinal cord stimulator implanted in my back also. The stimulator has helped so-so with my back pain but I really can’t tell any true improvement with my neuropathy. My spinal cord stimulator is an Abbott. All in all, I feel the hassle of recharging makes the whole ordeal of having stimulator more of a hassle than a help. If I had if to do over and know what I do know about my stimulator, I would not have had one implanted.

Jump to this post

I had my Abbott stimulator removed in February. The hassle of having to go to pain management Doctor every month for changing it . It never helped.

REPLY
Profile picture for marytech46hh @marytech46hh

I had my Abbott stimulator removed in February. The hassle of having to go to pain management Doctor every month for changing it . It never helped.

Jump to this post

How invasive was the surgery to get the device removed?

REPLY

I, too have an HFX. I've had it for almost two years. I went through the same process that you describe. At the very beginning it seemed like there was a mild improvement in the neuropathy in my feet. My back problems however, it never did anything for it. At this point in time, I'm not getting any relief from it at all. Unfortunately back injections aren't back on the menu and those don't work either. I hope the system will work for you.

REPLY
Profile picture for trustin356 @trustin356

How invasive was the surgery to get the device removed?

Jump to this post

Took about 15 minutes in day surgery. Just a small incision.

REPLY

the Abbott Burst Stimulator was removed in March 2025 after two years. As my neurosurgeon said "I gave it more than a college try" which made me feel I did give it a full go for the effect.
I was out for 30 minutes. Recovery was nothing, I was back on the tennis court and pickle court the next week.

REPLY

Has anyone had the HFX Stimulator removed? I know when it was implanted, I had two places where the surgeon cut to install the stimulator. One is the controller and the other was for the leads to my spinal cord.
I have found no relief from the stimulator.

REPLY

Spinal cord stimulators rarely provide much relief and have more risks than benefits. There are better, non-invasive alternatives. See this article: https://www.paintreatmentdirectory.com/posts/spinal-cord-stimulators-high-risk-low-benefit

REPLY
Profile picture for cperlin @cperlin

Spinal cord stimulators rarely provide much relief and have more risks than benefits. There are better, non-invasive alternatives. See this article: https://www.paintreatmentdirectory.com/posts/spinal-cord-stimulators-high-risk-low-benefit

Jump to this post

I totally agree. I wish I had known that a year ago.

REPLY
Please sign in or register to post a reply.