Connect
← Return to Is there an average and/or an expected drop in PSA after Lupron shot?
Discussion
Is there an average and/or an expected drop in PSA after Lupron shot?
Prostate Cancer | Last Active: Jul 30 8:26am | Replies (36)Comment receiving replies
Great info Jeff! Allow me to share a few things that I learned from watching my Dad on Lupron.
Dad’s cancer was detected when he was 70 yo. I was detected at the same age. His doctor want to physically cut his manhood off. That was his last visit to that doc. The year was 1992. He started taking Saw Palmetto pills and seeing a urologist who did Prostate massages. I don’t recall the history of his PSA. That said his Doc told him about “ a new treatment “ called Lupron. He agreed to take it and there were changes in his PSA Immediately! That said no one mentioned to him anything about calcium supplements. His posture started changing rapidly and on the day he got his Lupron shot it was amazing to see a different man walk out before the shot and the man who walked after the shot. The fatigue and what I called Apathy factor changed his personality ( no one has mention any of these same possible side effects to me at all. I told my docs that I didn’t want to go thru what my Dad went thru. He passed away in 2014 at the age of 92 and after deciding that he was ready to die; “ I’ve lived a good life
. I survived a Nazi OW camp for nine months. I have a great family. I had a great life and I’m ready to go. He stopped taking Lupron. My mother wanted him to continue, but he hated the way he felt, and he hated what it was doing into his body.
I happened to be going to his doc and although uncomfortable as ($&@“ I think the prostrate massage helped now to just ask for one makes docs and staff look at me like I’m a sex pervert and have even suggested going to a sex worker. I’m getting off the main part of what I wanted to tell you about a drug that I was taking and asked the doc if he would RX it for Dad it’s called Provigil. He agreed and it worked well for the fatigue factor ( I’m also taking it now; asked for by me) it really works well for the tiredness and works fairly well for the apathy.
Dad eventually stopped taking because his choice was to sleep most of the day away while watching ( eyes closed ) Two and a Half men the calcium drain had this powerful man all bent over struggling to walk so he didn’t want to be stimulated to be awake during the normal waking hours. It was sad to see him suffer so I’m trying to learn from watching him.
But as mentioned I’ve gotten horrible advice from most doctors at the VA I’m taking what I think will help prevent the calcium depletion; a good tasting liquid and vitamin pills from the drug store not one of the doctors mention any of the pills that you mentioned. Which ones should I ask my oncology pharmacist to RX for me?
And I’d like to recommend Provigil or Nuvigil for fatigue. Strangely enough it helps me sleep when I go to bed around 11 pm. My bathroom trips are down to 1 or two occasionally more depending on what I consume during the day including a glass of wine on occasion.
I’d love to find a support group that’s got member similar to what we have here. Sadly the wrong group can have horrible consequences. One group I can to in Florida had 15 members all who had prostatectomies the leader of the group was strongly suggesting that I have mine removed. I stopped going to that group as I noticed that they all had complaints . The only man with do complaints was a 92 yo Jewish man who wanted me to play golf with him. I would have if I played golf which I never got into.
I do want to know about calcium meds and anything else that will keep me alive at least as long as my Dad that would mean 13 more years
Have you any knowledge about the prostate massage?
Thanks for educating me!
Much appreciated!
Replies to "Great info Jeff! Allow me to share a few things that I learned from watching my..."
Connect
My father also died of prostate cancer, At 88 his father lived in 98. I remember the day he told me Lupron stopped working. I had never heard of it and was unfamiliar with what was going on, But he told me his cancer was getting worse as a result. My father had his teeth ground down and crowned without Novocain, when I was a teenager. He’d come home to dinner after seeing the dentist and eat normally. The last few weeks before he died, he was on so much morphine that he couldn’t carry on a conversation. Didn’t realize that my father dying of prostate cancer would not be a good omen for me.
In my case, it turns out not only did I get prostate cancer genes from my father I got BRCA2 From my mother. As a result, I got prostate cancer at 62 whereas my older brother got prostate cancer at 75 because he doesn’t have BRCA2.
You’re having some issues with the VA and I may have some information that will help you get better treatment. Ancan.org Holds a veterans health online meeting every first and third Tuesday of the month. They have a whole bunch of military people from generals and Colonel’s to all ranks, helping people get the best care they can possibly get. They know how to go around the military to get outside doctors and have it paid for It might really make a difference for you to attend a meeting.
You’re talking about meeting people that have similarities to what you find in this group. I have been involved in the advanced prostate cancer weekly meetings at Ancan.org For about four years. There’s a group of people that meets there every week and most of the people have been there for a long time and are there to help and to get help. If you come to a meeting for the first time, they will give you close to a half an hour to discuss what’s going on with your case and what can be done about it. They’ve been helping people for 15 years and really know their stuff. It’s a large group, Between 35 and 50 people show up to every meeting.
There’s another group I meet with that’s similar in that people know each other, some for a long time and they’re really friendly in the group. They meet twice a month. I’ve been going to these meetings for about a year. It is call the Cancer support community https://www.cancersupportcommunity.org/. This is another place you might like to come to the meetings and learn a lot. You do need to get authorized ahead of time so you just have to call and they want to make sure you have prostate cancer.