Connect
← Return to NET tumor of pancreas (1 cm) diagnosed
Discussion
NET tumor of pancreas (1 cm) diagnosed
Neuroendocrine Tumors (NETs) | Last Active: Jul 28 7:48pm | Replies (52)Comment receiving replies
@mdethardt: Sorry to learn of your disappointing experiences. NETS presents differently in patients and requires a NET Specialist Oncologist to guide and provide best treatment at different stages of our cancer journey.
For me I use my local Oncologist, who has minimal experience with NETS, for monitoring my disease and to receive my monthly Lanreotide injection to control symptoms and hopefully tumor progression.
Every 3months I travel to the City of Hope for MRI scan (liver metastases) and blood labs, as well as meet with my NETS Oncologist for his guidance. I hope my vigilance will discover progression early and I will get state-of-art therapy to reduce/control my disease. I will continue this schedule as long as I am able: I travel one day, attend to medical issues the next day and then travel home. Maybe something similar would work for you? Best of health to you… Bette
Replies to "@mdethardt: Sorry to learn of your disappointing experiences. NETS presents differently in patients and requires a..."
Connect
Thank you for your reply. Your action plan sounds sound. I am trying to convince my husband to see a specialist. This seems to be a common thread that I’m reading with all pnet patients. Fortunately or unfortunately, he feels fine and the cancer has not impacted his daily life. He believes in his oncologist. I don’t and will keep trying to convince him to see a specialist.