← Return to Anyone dealing with ANCA GPA Vasculitis?

Discussion
melodyanne avatar

Anyone dealing with ANCA GPA Vasculitis?

Autoimmune Diseases | Last Active: Sep 28 8:53pm | Replies (24)

Comment receiving replies
Profile picture for SusanEllen66 @SusanEllen66

@melodyanne
Vasculitis in general is not common.
I have had Vasculitis, Cutaneous Polyarteritis Nodosa (CPAN).

I have never found anyone else with that on here.
The reason is because it’s very very rare. Three cases in a million is tough.

Wishing you all the best.

Jump to this post


Replies to "@melodyanne Vasculitis in general is not common. I have had Vasculitis, Cutaneous Polyarteritis Nodosa (CPAN). I..."

My Mom passed away from Rheumatoid vsculitis, she was not diagnosed till she was 80 years old and had big open sores on her ankle and legs but every doctor even her Cardiologist told her "you;re just getting old" I demanded they test her for Autoimmune disease and 2 weeks later she had a diagnosis and high doses of Prednisone but passed away a few months after. Now I am having the same symptoms, burning legs, insomnia, chest pain and horrible depression but my Rheumatologist is hesitant to give a complete diagnosis, I have RA and Sjogrens too and all the medicine I've tried made me sick, good luck with getting fast answers but I wish you well.