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NET tumor of pancreas (1 cm) diagnosed

Neuroendocrine Tumors (NETs) | Last Active: Jul 28 7:48pm | Replies (52)

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Profile picture for mdethardt @mdethardt

Hey all. My husband was diagnosed with NET that metastasized to liver 5 years ago. Since then he’s had the injections, then embolization, then oral chemo and now PRRT/Lutathera to shrink the liver tumors. No NET specialists in Arkansas. Went to MS Anderson about 7 months after diagnosis when our oncologist could still not tell us the location of source tumor. Found out it as pancreas but Dr at MDA did not give us any action plan. At this point we just hope his local oncologist knows what she is doing. Seems odd to me that treating the liver tumors is only plan when the pnet could cause cancer in other organs.

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Replies to "Hey all. My husband was diagnosed with NET that metastasized to liver 5 years ago. Since..."

@mdethardt
Welcome to Mayo Connect. I can't disagree with your logic. I have a pnet that spread to my liver. The chemo that I am on works on both. Has anyone suggested that to you? Something that would work on both?