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Do You Too Have Small Fiber Sensory Neuropathy?
Neuropathy | Last Active: Jul 27 11:02am | Replies (15)Comment receiving replies
@lucylaughs
I also deal with obesity, bladder control issues (tied to my cervical spine stenosis/myelopathy), Hashimoto’s/hypothyroidism (tied to having one lobe removed due to large suspicious nodule), sleep apnea, brain fog, A1C elevated/heading towards prediabetes, congenital spinal stenosis/arthritis/degenerative disc disease, small fiber neuropathy (possibly linked to metabolism issues), etc. and I have had 6 surgeries in 4 years! Not fun and in lots of pain so can relate. I did take Cymbalta for a couple years until it stopped working for me. I am currently just taking extra strength Tylenol because I cannot take NSAIDs due to gastritis and esophagitis. I take Wellbutrin/bupropion for depression (from chronic pain and menopause hormone roller coaster) .
It is really good you are reaching out to others for help and I hear you about using canes, walkers, etc when you are in your 50s. I have the walking aids for when I need them in my home and haven’t started to use them in public yet (hope to delay as long as possible). My dogs and cats are all rescues (used to foster and I have multiple foster failures 😉) and they are definitely daily therapy for me as companions that give constant love and enjoyment. They run around and my instability in walking has me regularly pause and look down before stepping in different directions to avoid stepping on my pets (they all love to congregate around my feet). I also need to be careful not to trip or fall on their toys.
I definitely use grabbers to get things I cannot reach easily (also have a hard time bending down to pick things up due to cervical and lumbar spinal fusions and muscle weakness/numbness). My shower grab bars and built in chair are so very helpful. I take one day at a time and work within my energy levels. I prioritize each day what is most important and do things within my best energy times during the day.
I wish you the best continuing to build your support system to help improve your quality of life!
Replies to "@lucylaughs I also deal with obesity, bladder control issues (tied to my cervical spine stenosis/myelopathy), Hashimoto’s/hypothyroidism..."
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Thank you, I'm glad you have pets! I too am in menopause. People are guessing my brain fog is due to that. I see a specialist this week, eager to find out more about the whole menopause thing.
I have gotten a ton of help and support from people in my neighborhood. This is where I'm mainly making new friends in my new hometown. But I tire of asking for things from people. I tire of feeling like kind of a burden, but no one makes me feel that way. It's that you get tired of asking for things you need. It will be better if I can manage a remote job and/or get my SSD appeal through.
I'm so sorry you have so much to contend with healthwise. You inspire me. I'm dealing with considerable weakness out of the blue, and I'm in the process of switching neurologists. Yet I need SSD paperwork filled out. What a complicated nightmare this is.
I'm seeing now that I absolutely have to move later this year, as I'm on the second floor. Should probably also find a building without front steps too if possible. I know that physical therapy helps, but I lack the wherewithal to go to PT appointments. It takes a lot out of me just to put my groceries away.
I'm going through a long process of grasping all of the reality of this. My neurologist says I won't end up in a wheelchair. I hope he's right about that. I'd like to think that the recovery he predicted is possible, but I think it's a bad sign that things are getting worse.
I know what you mean about traversing your place being complicated by pets. My cats have this thing for wanting to walk right in front of me. They will even make a point of doing that when I'm carrying my big plant to water it.
Well, best wishes to you as well.