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What have you done to improve balance?
could you please comment if you have been able to measurably improve your balance? what did you do and for how long each day? thank you!
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@arcuri24 I like your attitude towards PN and it seems you are taking an aggressive approach which is great. I did PT and like you over did it and paid the price for 2 days afterwards. I then realized that with PN, we must pace ourselves and I learned years ago not to use up all my energy in the morning because by afternoon, my energy was gone. PN can be exhausting and for me, keeping my balance can be tiring. You are right PN is life changing but not life ending. Just need to adjust and as you say face the mountain. Best to you!! Ed
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4 Reactions@sueinmn Sue, thanks for your kind words, well appreciated. Unfortunately, you are spot on saying not sure medicine is there yet. In my opinion, it's not. As many of us are living longer and more and more people are being properly diagnosed with PN, I feel things will change in a few years. Like many things, the cure may not exist for years and years away but the ability to slow down progression....that will first be the key. I feel by slowing down progression, that will eventually take medicine to prevention, then eventually elimination. I acknowledge, this is long term, but I'm convinced it will happen someday. Meanwhile, we keep moving and live our life to the best of our ability even if we exercise in our sleep! Ed :}
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4 ReactionsNice post. IMHO there a sense of quiet desperation that seems to thread through these posts (I suppose that's why we post). My posts included. We all search for something that will reduce the effects of PN. So many causes and variations of effect! It's interesting to read all the remedies that are tried. Some seem to help. Most don't. Still, nothing wrong with experimenting. The best of us seem to accept the condition, knowing there is no means to stop the spread of PN in our bodies, and are diligent with tried and true activities e.g. balance exercises, walking slowly (careful down those stairs!), etc. The encouraging news is that my kids likely won't get PN. And if they do, there will be a winning treatment. That's one thing that helps me look on the bright side.
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4 ReactionsSo far PN has not attacked me, just balance and falling issues But I have a lung disease in the same category as PN - not fatal, no cure, miserable to live with and life changing.
The good news is that, unlike 7-8 years ago, new management strategies for slowing progression exist and 2 new drugs are coming , one in just a few months. Also new drugs for treating the infections that come with bronchiectasis are available now to offer more infection free times.
It all comes with living longer! When I was a kid and someone lived to their late 70s everyone said "he lived a good long life!" Now we say "he's gone so soon "
Or as I like to say, 80 is the new 60.
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5 ReactionsHello,
My balance problems are due to spinal stenosis, and were greatly improved after having the Minimally Invasive Lumbar Decompression performed. Good Luck!
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3 ReactionsIt can be especially hard, especially when you've grown self-reliant––or at least it's possible for you to be self-reliant, in all things and under all circumstances. ––Ray
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1 Reaction" … let us refrain from calling it aging … "
Hip, hip, hurrah! I tryto call very few things "aging," unless they're truly aging. On one hand, I'm realistic about my age (80), but onthe other hand I see no reason, by blaming all of life's changes on "aging." I see no reason to bring my spirits down unnecessarily. There are plenty of things happening in the world today that bring my spirits down. Why do it to myself?
Best wishes all around!
Ray (@ray666)
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4 ReactionsHi, Sue (@sueinmn)
Oh, yes: tie those shoes! That's a good one! I'll have to add it to my mantra. And those bits of rope: they'll get you every time!
"Listing" to the left can be a problem. My feet, after all those years of running, are a mess––at least I think they are; my podiatrist, an ultra-runner, tells me my feet "look good." He tells me they look good, right after I've pulled off my socks and said to him, "I'm sorry to have brought you these same ugly feet!"
If I "list," I wonder which way: right or left? Knowing which way would be good to know before traveling by ship in a bad storm. 🙂
Tips on how not to rush? That's a tough one. All of my life I've been a rusher. PN keeps trying to teach me to slow down. Short of hobbling my ankles with an elastic band, I don't know what to say.
I'll close, Sue, by wishing you a fabulous––perhaps un-rushed––weekend!
Ray
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5 ReactionsI had told my friends that 70 is the new fifty. Even though I am beset with this neuropathy, I realize that it also chooses younger people as well. Most of us have been told to accept certain things as part of aging including loss of balance and loss of muscle. It doesn't have to be that way but it sure is a challenge to regain what we want. Trying to be optimistic!
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4 ReactionsHere's an ear worm for a tip Ray 🙃 https://www.youtube.com/watch?v=z1Reuyu9e_o
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3 Reactions