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Giant Cell Arteritis Diagnosis

Polymyalgia Rheumatica (PMR) | Last Active: Aug 3 6:19pm | Replies (98)

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I was treated for GCA in 2019. My symptoms started across my facial bones near my eyes and in left temple. I saw my ENT thinking it was bad sinuses. He sent me immediately for labs. The labs were normal. He recommended seeing my dentist and opthamologist. Dentist sent me to Endodontist for extensive scans and test which were all negative. Opthamologist visit showed nothing in eyes But he wanted to treat it as GCA out of caution of sudden temporary or permanent blindness in eye near temple pain. He told me the only definitive test is temple biopsy looking for giant cells. However unreliable as the artery inflammation leaves gaps and biopsy could miss. I drove 300 miles to have a duplex ultrasound that diagnosed possible GCA. My Rheumatologist told me if GCA that my jaws would hurt and would become very weak and heavy when chewing food. My opthamologist was not as passive so he started me on 60mg of "nightmarish" prednisone. Tapered to 5mg over 6mos then possible flare so up to 80mg ordered by now new doctor(Neuro opthamologist). Finally off after one year. This was five years ago and still suffer from side effects of Prednisone. Unfortunately, I'm now having PMR symptoms in hips, shoulders and knees. I Do Not Want to Take Prednisone due to all the damage it caused. The sad part for me was within a month off prednisone taken to protect my sight I developed a hole in Macular. Surgery did not correct my vision.

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Replies to "I was treated for GCA in 2019. My symptoms started across my facial bones near my..."

That's a tough story. Have you thought about Kevzara and/or methotrexate? The Kevzara can several weeks to take effect, but those drugs could control your PMR symptoms without taking prednisone.

I’ve had definitively PMR for 3 years. I’ve not had jaw pain or chewing problems or chewing heavy etc etc. I am very sorry that a rheumatologist would be so set in their ways to say what they did to you! Since Covid these medical professionals need to reevaluate the always never syndrome some have. We need physicians that listen ask questions and consult with their piers in their medical practice as well as other specialties. There is a likely chance that these conditions and their variations have indeed been brought on by pharmaceutical industry whether preventative or treatment wise. 🤓