← Return to Adult Life after a Traumatic Brain Injury

Discussion
Dawn Pereda avatar

Adult Life after a Traumatic Brain Injury

Traumatic Brain Injury (TBI) | Last Active: Nov 5 10:41am | Replies (227)

Comment receiving replies
Profile picture for pcg @pcg

I too fell in a skiing accident in 2007. All of the attention was paid to my fractured back and none ever to my head even though I had become such a different woman. My husband and children noticed that I was different but attributed it to my pain. I needed to have them see that it was more than that, that I needed help and needed it badly. After having made so many unusual for me mistakes, definite personality changes like responding in ways I never would have if I were normal, inability to follow a recipe, leaving water running and flooding out a room, repeating myself when telling stories, being late for everything, always late, after all of this and finally even a serious suicide attempt the help I need has not come. No one has a place for me to get help. I have suffered the embarrassment of the suicide attempt and being punished by doctors for having done such a bad thing. They didn’t know what was the matter. It’s amazing to me that people don’t automatically recognize TBI’s. It’s a chronic problem but one that no one talk about. I now watch football players getting tackled and I cringe. Why don’t they know that these men are hurting themselves?
Well, over the past month I have fallen twice, planted my face first on the ground both times. My brain hurts, sounds hurt, light hurts, I’m exhausted. I broke by arm and my tooth went through my lip and chin.
No one has checked for a brain injury. I don’t even know how they do that but I know that my brain has been injured two more times and that it still hurts just like my arm.
What can I do?

Jump to this post


Replies to "I too fell in a skiing accident in 2007. All of the attention was paid to..."

@pcg I'm so sorry to hear about your struggles. It is quite a challenge to explain to others that you are struggling when you have no obvious outward signs of your injury. (It's all in your head!)

Are you able to enlist an advocate to go to the doctor with you? Keep track of your symptoms and share them with your primary care provider. Ask them to refer you for a PCS evaluation. If the doctor doesn't take you seriously, find a new provider. Unfortunately, in 2007 awareness around TBI's was not as high as it is now. Even now, I have found that I (and, more often, my family) have had to really advocate for what I need. Having family on my side during this journey and in doctor's appointments was so crucial for me because I was not able to articulate my needs in the moment., and I was not able to remember what the doctors said during the meetings. I would recommend you keep a diary and share it your health care providers. My doctors said that they found my notes to be very helpful.

And, BTW, my MRI and Scans did not show any bleeds or obvious swelling at the time of my injury. But 3.5 years later, I'm still feeling the effects of my fall.

Good luck on your journey!