Welcome, @suziktodd. You've received some supportive and helpful posts from members. I'd like to add my welcome and a couple of thoughts. If seeing a NET specialist at Mayo Clinic is an option for you, you might consider a second opinion at Mayo Clinic in Jacksonville. You can get started by submitting a request here: http://mayocl.in/1mtmR63

Whether you are a Mayo patient or not, you are always welcome to attend the monthly meetings led by a Mayo Clinic NETs social worker. The next meeting is August 7.
- Neuroendocrine Tumor Support Group Meeting: Zebras https://connect.mayoclinic.org/event/neuroendocrine-tumor-support-group-meeting-ne-fl-neuroendocrine-cancer-zebras-1-e9cf5211/

Sue, when is your next oncology follow-up after the CT scan?