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My journey to here...

Neuroendocrine Tumors (NETs) | Last Active: Aug 10 8:45am | Replies (11)

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Anita,
You asked, “How does one go about looking for oncologists who specialize in NETs?”
There are some NET specialists/surgeons that are quite well known in the NET world because they are well respected, very knowledgeable, and have helped many. I will list a few that I am aware of:
Dr. Eric Liu in Denver, Dr. Jonathan Strosberg at Moffitt in Tampa where I am being treated, Dr. Jason Starr at Mayo in Jacksonville FL., Dr. Thor Halfdanarson at Mayo in Rochester Mn. These are just a few – and three of them are on the east side of the US. And other patients may also mention who they are being treated by.

Here at Mayo Jacksonville we have a monthly Support Group Meeting via. Zoom and this next month Dr. Jason Starr will be the speaker. Come, join, and ask questions. Dr Starr is very knowledgeable, and you will learn a lot. It is always the first Thursday of the month, so the next meeting will be August 7th at 5:30 PM. Here is a link that should allow you to pre-register for the meeting.
https://mchealth.zoom.us/meeting/register/wcWv-MZNTAOg_NU5Xw8jLQ
I may miss the August meeting due to travel, but hope you can join in.

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Replies to "Anita, You asked, “How does one go about looking for oncologists who specialize in NETs?” There..."

That's great info, thank you! I'll make myself a note to join the zoom and try to make it.

I'm not close to any of the Mayo clinic locations. I do have a local friend who drives to the MN one so I assume that's the closest. He didn't like the care he got here locally at diagnosis, but that was 8 years ago. Now he does a combo of going there and they arrange for him to have some stuff done here to save on traveling/expense.