I became disabled with ME/CFS (Chronic Fatigue Syndrome) following an acute Epstein Barr Virus infection almost 40 years ago. The EBV virus initially attacked my nervous system and I was very sick for years. Still have ME/CFS. But from the first day my whole body experienced vibrating sensations, along with many other symptoms that affected every part of my body. Ever since then nerves in my legs have never stopped buzzing - to one degree or another. Then about 20 years ago it started slowly progressing along with numbness, stocking -glove sensations, and muscle weakness. Later I started losing balance and falling.

Although my original neurologist who did the nerve conduction studies, ct scan and blood tests, etc, dx’d it as Idiopathic, my new neurologist is a young smart guy from Johns Hopkins knows a lot about EBV and post viral syndromes. He confirmed what I already knew having done my own research. No additional test was done but my case was pretty obvious. The EBV virus can cause nerve damage and not all EBV infections present as mononucleosis or with upper respiratory symptoms, My new neurologist also believes the initial virus triggered an autoimmune response in my nervous system. Plus I’ve always had speckled pattern ANA’s autoimmune antibodies.

For more info re EBV and nerve damage:
https://www.clrn.org/can-epstein-barr-virus-cause-nerve-damage/