← Return to What have you done to improve balance?

Discussion
thomasmichael avatar

What have you done to improve balance?

Neuropathy | Last Active: Jul 30 1:52pm | Replies (72)

Comment receiving replies
Profile picture for thomasmichael @thomasmichael

Nice post. IMHO there a sense of quiet desperation that seems to thread through these posts (I suppose that's why we post). My posts included. We all search for something that will reduce the effects of PN. So many causes and variations of effect! It's interesting to read all the remedies that are tried. Some seem to help. Most don't. Still, nothing wrong with experimenting. The best of us seem to accept the condition, knowing there is no means to stop the spread of PN in our bodies, and are diligent with tried and true activities e.g. balance exercises, walking slowly (careful down those stairs!), etc. The encouraging news is that my kids likely won't get PN. And if they do, there will be a winning treatment. That's one thing that helps me look on the bright side.

Jump to this post


Replies to "Nice post. IMHO there a sense of quiet desperation that seems to thread through these posts..."

So far PN has not attacked me, just balance and falling issues But I have a lung disease in the same category as PN - not fatal, no cure, miserable to live with and life changing.
The good news is that, unlike 7-8 years ago, new management strategies for slowing progression exist and 2 new drugs are coming , one in just a few months. Also new drugs for treating the infections that come with bronchiectasis are available now to offer more infection free times.
It all comes with living longer! When I was a kid and someone lived to their late 70s everyone said "he lived a good long life!" Now we say "he's gone so soon "

Or as I like to say, 80 is the new 60.