← Return to Polymyalgia rheumatica: Any thoughts on my taper plan?

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Profile picture for aussiedogmom @aussiedogmom

I slowly deteriorated until I saw the rheumatologist, about 6 months after the referral was made. I stayed on a low inflammation diet (ate so many blueberries that my urine turned pink), went to PT and had a PT who was perfect- familiar with my local Ys and worked with me to jave a complementary gym program going. But I was rather severely affected by late summer....PT told me "At XYZ( my favorite Y branch, and is also a medical fitness facility with an amazing pool), the parking is not close. There will be days when all you can do is get there, walk in the building with your bag, and turn around, walk back, drive home. I'm going to count those days as a Win." And he was right. Some days I could barely walk into PT with my cane.
I also took Turmeric and Tylenol. It was really rough.

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Replies to "I slowly deteriorated until I saw the rheumatologist, about 6 months after the referral was made...."

That sounds really bad, and a reminder that it takes a long time to see rheumatologist, and when you are in pain it’s like forever. My GP follow up is this afternoon and I am anxious for the appointment. I hope my inflammatory labs are still normal. I know that I could still have PMR, but I will hope they are still low.
My PT does not think it is PMR and says that while I am still very sore and stiff, she sees progress. In the meantime it cannot happen fast enough. All my soreness and stiffness are in my piriformis, glutes and hamstrings but walking is painful. Sleeping better at night. The PT exercises make me sore, of course, and my rotator cuff is firing up. I realized I have a right shoulder problem last year when I started playing pickleball. When something like this hits you all at once, it is very scary, as many have said!