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New PNET Question Re: Surgery (I'm in bit of a pickle)
Neuroendocrine Tumors (NETs) | Last Active: Aug 7, 2025 | Replies (16)Comment receiving replies
Hi Sue
I had a modified Whipple and it’s a big surgery. I had my first surgery in 2017 and my tumor was just under 1 cm and the surgeon missed it. I waited 18 months for better insurance and went to a NET Specialist and a surgeon at Mayo I trusted and had a second surgery in 2019.
I still have GI issues and other residuals popped up from such a big surgery. It changed your life in a big way.
Please seek a second or even a third opinion with NET Specialist before doing anything.
Wishing you well!🙏💜
Replies to "Hi Sue I had a modified Whipple and it’s a big surgery. I had my first..."
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Thank you, Em, for sharing your story with me. That's gives me a good understanding too, wow, it sounds like with the smaller tumors, they can miss it.