I'm new here. On Tymlos since April 11th, worked up to full dose within about a month but had abdominal cramps, so went back one click to 7 clicks. Now I seem to be getting small pink splotches or streaks, a few days in a row; considered sort of a rash, I guess. I just went back to 6 clicks.
My biggest concern now is microscopic blood was found in my urine June 2nd and again July 8th (a bit more second time), and now I have a CT scan scheduled next week. My question is (and I will put this on other topics too):
***Does anyone have experience or know of someone with blood in urine from using Tymlos AND were they asked to stop taking it by their doctor. ***
I have no good other options due to very mild heart condition and gum disease, meaning bisphosphonates really dangerous for me (for osteonecrosis of the jaw). And Prolia seems too dangerous. I hope to stay on Tymlos.
Any thoughts/advice are appreciated - thank you.