← Return to Airway clearance and how I feel throughout the day

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My experience is that I was working too hard with the inhaling, exhaling, and huff coughing and felt exhausted also.
I was not relaxing and doing it correctly. It is hard to teach in words, however, be gentle with the inhaling, exhaling and huff coughing.
I bring up mucus all day long it is so time consuming, if nothing else, and there is plenty of nothing else for us with BE.
Are you sleeping on a wedge at night? Hope so, that is very important.
I wake up at night to walk down the hall to release my bladder and then have to clear mucus before trying to go back to sleep.
Mornings we do have much mucus having built up in the lungs at night.
I am doing my best to nebulize twice a day and many times I will do three times a day with the nebulizing of saline. The third helps with clearing just before bed.
I take it you are sending mucus, mucus plugs, specimens into the lab for testing for the infection and the degree of the infection, type of infection and the number of colonies. Some labs are limited in their ability to do get all that information.
We will probably not be able to clear fully, each time, all the mucus build up. That is my belief and understanding.......and if I am wrong I hope someone will respond to this belief and what they understand.
Barbara

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Replies to "My experience is that I was working too hard with the inhaling, exhaling, and huff coughing..."

Thanks so much for your reply. Every bit helps me stay connected and not feeling so isolated.
FYI, my Pulmo at Ucla doesn’t do regular sputum samples. He’s very attuned to the problem of over treating with too many antibiotics.
I have had two bronchoscopies and the last showed some Aspergillus, Mac and MSSA
However, I’ve been previously treated with so many antibiotics. He wants me to just concentrate on airway clearance and has reduced me to once a day. I hope that’s enough, especially since I have this in three lobes
I’m not sure, but I believe he said that these were just samples and had not necessarily formed to colonies yet. However, something has caused my be to progress from one lobe to three Especially after doing two surgeries which were supposed to alleviate The progressionand I’m wondering if anyone else has multi lobe or multifocal illness
Yes, the pneumonia I had for such a length. Eventually caused an and my upper right lobe became necrotic with cavitation.

I asked him how much of my lung was affected by a Beand he said 20%
He then said I have moderate BE .
Thanks for checking the time to read Jill