Connect
← Return to New PNET Question Re: Surgery (I'm in bit of a pickle)
Discussion
New PNET Question Re: Surgery (I'm in bit of a pickle)
Neuroendocrine Tumors (NETs) | Last Active: Aug 7, 2025 | Replies (16)Comment receiving replies
I know it's hard to wait but surgery is major. Are you having symptoms besides fatigue? Is the NET causing pain or blocking things so your body can't work properly? If so I'd pursue surgery but if not, I'd wait. That's just me. 8/12 isn't too far off and a painless scan might give you the info you need on how to proceed. And yes, I have super tired days where I'm in bed by 8.
Replies to "I know it's hard to wait but surgery is major. Are you having symptoms besides fatigue?..."
Connect
# 1 issue is relentless fatigue where I have no choice but to sleep, b/c I cannot keep my eyes open, not close to the side effects like leaks, and etc. That comes in phases, like 3 hours I am wide awake, then all of a sudden I cannot keep my eyes open. So, an additional follow question would be, wait for it to cause more issues or get bigger, then consider it surgery, and if so, any thoughts on 'open' vs. robotic? You're right, 8/12 is now right around the corner and is coming up fast.