What do I do now?
I just saw someone post about the bad side of Gabapentin but it is the only thing that is helping with my pain, taking 300mg 3x/day. I am in pure panic mode again and don’t know where to turn. Someone help me with something positive. Anything. I don’t know how or if I can go on. I saw a psychologist today to help me how to cope with the prospect of a lifetime of pain but she wasn’t much help. It isn’t her fault, I don’t think anything can help me. I am so sorry for sounding so down but I am truly struggling and don’t know where to turn.
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I have only ever taken pregabalin. Started with 75 mg morning and night. Increased to 75 mg in the morning and 150 mg in the evening. I have type 2 diabetes that was diagnosed maybe 7 or 8 years ago. It works 80 or 90% of the time. Some nights the pain in my feet just won't stop. I don't want to tell my Doctor because he will just increase the dosage again. I put up with the pain, once in bed and laying horizontally the pain stops and I drift off to sleep
Hi @cbadder99, Welcome to Connect. I don't have pain with my neuropathy, just the numbness so don't have to take pain medication. I think others have also mentioned that after awhile the gabapentin/pregabalin dosage usually needs to be increased as it becomes less effective in treating the pain. You might want to scan through the discussions and comments from others on what helps neuropathy - https://connect.mayoclinic.org/search/?search=neuropathy+what+helps.
Have you tried any complementary or alternative therapies?
The only pain I had was in my chest that was a dead ringer symptom for diabetic neuropathy. However gabaPentin did NOTHING for it. I also had terrible itching on my legs and basically all over that got worse as the evening wore on. After switchin over to PreGabalin about 3 and 1/2 years ago the chest pain and itching went away and are still gone. Recently went from 75mg 3X per day to 2X per day since sometimes missing the PM dose didn't seem to cause issues. Unfortunately what works for one person doesn't translate to success for someone else. This is where Genomic medicine could come into play. From my DNA analysis I find that I don't get much kick from caffeine and I'm more likely to produce liquid ear wax than solid ear wax. What I do produce is solid however.