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Polymyalgia rheumatica: Any thoughts on my taper plan?

Polymyalgia Rheumatica (PMR) | Last Active: Aug 8 6:27pm | Replies (57)
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Our stories are very similar. Along with PMR I also have GCA. I got down to 3mg, feeling great and all my markers were normal. I went to 2mg and had no PMR symptoms but the GCA symptoms came on fast. Tender scalp, headache, runny nose, neck pain, etc. Went up to 3mg and it was a little better. Went to 5mg and now feel normal again. Hopefully I can taper back down to 3mg and ride it out from there.

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Replies to "Our stories are very similar. Along with PMR I also have GCA. I got down to..."
jeff97 | @jeff97 | Jul 24 4:20pm

I'm glad you feel better at 5 mg. I felt like I had a lot of doses during my taper where I felt better - 40, 20, 12.5, 7, 5, 3, and 2. 5 wasn't too bad, and 3 was better, at least for me.

I just googled what percentage of people with GCA have flares, and it said approximately 34 - 74.5, depending on various factors.

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