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NET tumor of pancreas (1 cm) diagnosed

Neuroendocrine Tumors (NETs) | Last Active: Jul 28, 2025 | Replies (52)

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Profile picture for lanamarie @lanamarie

I am at Mayo in Rochester where the doctor in Internal Medicine began with me six years ago. He has coordinated my care there, since beginning with him. He has followed up on all my appointments with me. Now Mayo has implemented some stupid rule that automatically closes your association with your physician after what someone (not the physician) determines that particular care is complete. So, no I do not have a primary care doctor there or even a doctor that coordinates all areas of healthcare. I believe I will be transferring to another facility after my appointments next week. It seems strange for a patient to opt out of Mayo, but I am so disappointed in just being a number in their huge computer bank.

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Replies to "I am at Mayo in Rochester where the doctor in Internal Medicine began with me six..."

Do you or did you have NETS cancer? Are you in remission?

@lanamarie, I encourage you to contact the Office of Patient Experience. They would appreciate getting your feedback and how this may affect where you choose to continue with your care. They may also be able to mediate communication to get you connected.

Mayo Clinic Office of Patient Experience
https://www.mayoclinic.org/about-mayo-clinic/patient-experience
Phone: 844-544-0036 (toll free)
Email: opx@mayo.edu