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Can anyone share their experience with Nubeqa?
Prostate Cancer | Last Active: Aug 14 4:00pm | Replies (55)Comment receiving replies
I am 72, 9th month on Nubeqa, upon diagnosis last Oct, by PSA was 62, metastatic PC. Started Nubeqa and Firmagon right after the biopsy results. PSA dropped to 1 by the end of November and undetectable by Feb,
I have been good at managing the ADT side effects, which can get bad if you are not active. I am a life long weight lifter, so I have continued my normal workouts all through this time, My strength has not changed, in fact over the last 2 months I am getting stronger and rarely experience ADT fatigue, but I still have hot flashes.
My doc told me Nubeqa has fewer side effects than the other 2 gen androgen blockers. Luckily my Plan D prescription insurance pays for hit, it is very expensive otherwise.
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BTW
My care team is really great a monitoring my blood work on 3 month intervals now, ADT impacts calcium and D3 levels. My D3 levels were borderline low the first few months, I am now taking 7000 units of D3 each day, my D3 is approaching the 50 range, which is very normal. The impact of this is I feel much better the last month or so. The ADT side effects are very minimal now. I have also improved my diet with healthy choices and more daily protein. No junk food, I even have given up my normal weekly glass of wine😊
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My oncologist is more amenable to adding Nubeqa rather than replacing Orgovyx with it, which is what I’d prefer after one year. Yes, Orgovyx is also very expensive: nearly $9 K retail monthly or $3500 insurance cost, but $125/mo coinsurance which very fortunately is being covered by a grant through Biologics pharmacy. Grateful!