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Delay in diagnosis

Gynecologic Cancers | Last Active: Jul 25 8:46pm | Replies (25)

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Profile picture for dlgbb @dlgbb

@tdfraze I did not have any tingling in my extremities, but did have some tingling in the groin area. I had 25 external pelvic radiation treatments. It is very normal to feel weak and tired - it took weeks for that to get better, and I still do not have all of my energy back yet. My biggest issue has been radiation enteritis/proctitis. The symptoms still come and go and are easily triggered, especially with alcohol. I had 1/2 a glass of wine a few weeks ago, and it set me right back to how I felt during treatment. I think I will abstain for about 6 months before I try again. I also just had some scanning done because of swelling on my left pelvic side. My family doctor suspected a surgical hernia, and my radiation oncologist suspected lymphedema. It turned out to be non-specific trace of free fluid. I am not sure if anything will need to be done about it or not, as I am waiting for another abdominal ultrasound and a colonoscopy. One thing I will say is that with every test, my anxiety goes up, but it is really important to keep going, have fun every day, and try not to worry.

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Replies to "@tdfraze I did not have any tingling in my extremities, but did have some tingling in..."

I dont drink alcohol, and I had 28 days radiation. I had severe blood clot damage in left leg, and that swelling weakness is very bad, but I think it's from the damage.
I haven't had my first scans yet. That will be Aug. 8th. Heard a lot about contrast they use if sugar based is not good for cancer. That makes me nervous as well, but I'm on many suppliments that fight cancer, help immune as well. I really want immunotherapy, read it's very effective on endometrial cancer, but I did not want chemo, and they won't give it at my cancer center without it. So , I looked into immune suppliments etc