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Weakness in legs and knees

Brain & Nervous System | Last Active: Feb 7, 2017 | Replies (10)

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@predictable

Hi, @pennie. Glad to see you reach out for fellowship here on Mayo Clinic Connect. Sad that I don't have personal involvement to share with you, but a good friend has just spent more than a year in treatment and rehabilitation from normal-pressure hydrocephalus. She had a shunt installed and has worked through virtually all of the impediments her condition caused -- including the symptoms you mentioned and more -- and she is now nearly always comfortable in her old haunts among friends and neighbors around town. She says her success came from a good, communicative relationship with the best specialist on hydrocephalus on the East Coast. He practices in Richmond, Virginia -- only 100 miles away from her home. Can you visualize yourself tracking down a real expert to work with?

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Replies to "Hi, @pennie. Glad to see you reach out for fellowship here on Mayo Clinic Connect. Sad..."

I am in Las Vegas Nevada, diagnosed with NPH and have had the adjustable shunt installed with significant success, by Michael Seiff at Sunrise hospital. After inpatient therapy at Sunrise and Las Vegas Continuing Care, I then went to ActiveRX for follow up outpatient therapy as recommended by dr Seiff to help with weakness in my legs and knees. I am using some of my long term care insurance right now to stay at a memory care facility and work up to the point where I can return to my home and usual activities.

I think that it will take me about a year to work through the symptoms of weakness and discomfort with my physical orientation in my environment. I started with the neurosurgery on 3/2/16 and improved consistently with additional occupational and physical therapy.