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Polymyalgia rheumatica: Any thoughts on my taper plan?
Polymyalgia Rheumatica (PMR) | Last Active: Aug 8 6:27pm | Replies (57)Comment receiving replies
I have PMR and GCA. Before treatment I remember lying in bed at night trying to decide if it was worth the pain to turn over to get into a more comfortable position. I also had a lot of trouble putting on socks and also shirts and jackets due to shoulder pain. Driving was difficult too, because of my stiff neck. Since I started treatment (prednisone plus Actemra a little later), I haven't had any pain or stiffness at all.
Replies to "I have PMR and GCA. Before treatment I remember lying in bed at night trying to..."
Glad to hear your treatment is working well for you. I never had to be on Actemra though. Any side effects? Wish you well.
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Our stories are very similar. Along with PMR I also have GCA. I got down to 3mg, feeling great and all my markers were normal. I went to 2mg and had no PMR symptoms but the GCA symptoms came on fast. Tender scalp, headache, runny nose, neck pain, etc. Went up to 3mg and it was a little better. Went to 5mg and now feel normal again. Hopefully I can taper back down to 3mg and ride it out from there.