@lucylaughs
I can relate with what you are going through. I was diagnosed with idiopathic small fiber neuropathy about 8 years ago and now I’m in my mid-50s.

My neurologist at the time wasn’t really helpful other than testing, testing and more testing. Not much help in diagnosing root cause or treating. There really isn’t any “cure” for small fiber neuropathy and the best you can do is treat the cause if known (diabetes, alcohol, vitamin b12 deficiency, vitamin b6 toxicity, etc.).

Did you have a full neuropathy bloodwork panel done? Did you have any abnormalities outside reference ranges? Are you diabetic or prediabetic? Did your neurologist do an EMG/nerve conduction study to test muscle health/nerves? What are your other health problems?

I take alpha Lipoic acid, Acetyl l carnitine and magnesium supplements for my neuropathy and it helps minimize the burning/pins and needles feeling for me. I need to walk more slowly because I am not very stable. Having a dog can add more responsibilities and they can actually cause you to trip when they stand near you (I have 2 dogs and also cats and they can be a trip hazard).

How old are you? Do you have any family or friends who can help you?

Here are some AI suggestions:
“ I'm really sorry to hear about what you're going through. Small fiber sensory neuropathy can be quite challenging, especially when compounded by other health issues. It's understandable to feel overwhelmed, especially when navigating the healthcare system and seeking the right support.
Understanding Small Fiber Sensory Neuropathy
Small fiber sensory neuropathy primarily affects the small nerve fibers responsible for transmitting pain and temperature sensations. Symptoms can include numbness, tingling, and pain, which can make daily activities difficult. It's not uncommon for individuals with this condition to experience a range of other health problems, and it can be frustrating when healthcare providers don't seem to fully understand or address your concerns.
Alternatives for Navigation Support
If you're considering alternatives to a service dog or cane, here are a few options that might help you navigate more safely:
Mobility Aids:
Rollator Walker: This can provide support while walking and has a seat for resting.
Walking Stick: A lightweight walking stick can offer stability without the connotations of a cane for blindness.
Technology:
Smartphone Apps: There are apps designed to help with navigation and alert you to obstacles.
Wearable Devices: Some devices can provide haptic feedback to help with navigation.
Personal Safety Devices:
Alert Systems: Devices that can alert someone if you fall or need assistance.
GPS Trackers: These can help loved ones keep track of your location for safety.
Addressing Weight and Health Concerns
It's important to approach weight loss and exercise in a way that feels manageable and supportive. Rapid weight loss can be unhealthy, especially when dealing with a chronic condition. Here are some suggestions:
Set Realistic Goals: Focus on small, achievable changes rather than drastic weight loss.
Consult a Nutritionist: A professional can help create a plan that accommodates your health needs.
Gentle Exercise: Activities like swimming or chair exercises can be easier on your body while still promoting movement.
Emotional and Psychological Support
Meeting with a neuromuscular health psychologist is a great step. They can help you process your feelings about your condition and provide coping strategies. It's also beneficial to connect with support groups, either in-person or online, where you can share experiences and gain insights from others facing similar challenges.
Connection to Edema and High Blood Pressure
Small fiber sensory neuropathy can sometimes be associated with other conditions, including those that cause edema (swelling) or high blood pressure. It's essential to discuss these concerns with your healthcare provider, as they can help determine if there's a connection and what steps you can take to manage these issues.
Remember, you're not alone in this journey, and seeking a second opinion is a valid choice if you feel your current neurologist isn't addressing your needs. It's crucial to advocate for yourself and find a healthcare team that listens and supports you.”