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i've now entered year 6 of long covid (March 2020 onset) and SOB is one of my longest lasting, most terrifying symptoms. i have undergone an overwhelming # of tests - just completed my 3rd pulmonary function test since 2022. My latest is largely unchanged. Haven't discussed the results yet but some of my docs interpret it as saying i have COPD, others say asthma. the report itself is clear: as with the other two I've had done, bronchodilators don't help. Every radiological test i get (xray, CT, MRI) shows "hyperinflated lungs". I show scarring and loss of lung volume. My biggest issue however is not structural - it's my diaphragm (which is flattening) and dysautonomia-triggered episodic crises where i can't draw breathe and my accessory respiratory muscles in my upper chest, neck and back get overtaxed, causing cramping and severe pain as i struggle to breathe. I end up in the ER and they never find anything. Nada. Zip. On a regular basis, my rib cage and diaphragm get 'stuck'. I've made a lot of progress opening this up via physical therapy (find a good one who can assess for this and do osteopathic interventions as needed). I should mention, I had major abdominal surgery a year ago where my surgeon found "extensive inflammation/adhesions" throughout my upper abdomen when he opened me up - including a highly inflamed and enlarged Median Arcuate Ligament - this is the ligament that supports the diaphragm. He removed this and all the adhesions which has helped me to breathe easier. So I'm much better than I was several years ago, but it has not been an easy path to identify and resolve issues. I still have daily torso pain related to ??? Something's still drastically off, but its identity evades me and my providers. I feel for you, OP and all who are commenting. I don't have any cures I can share with you. But you have no idea how badly I wish I did. 🙁

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Replies to "i've now entered year 6 of long covid (March 2020 onset) and SOB is one of..."

I’ve recently had SOB. Hope to see specialist neurologist before I catch anything else.

suef

This might not help all my fellow sufferers right now but this thought gives me hope for a time in the not so distant future for “No, resident will say I am sick…..” Isaiah 33:24
5 yrs 4 mos palpitations, SOB
Almost 75