← Return to What to expect on first visit to gastro?

Discussion
butterflykizzs avatar

What to expect on first visit to gastro?

Digestive Health | Last Active: Jul 23 5:27pm | Replies (7)

Comment receiving replies
Profile picture for catherine1290 @catherine1290

When I showed up in the ER I was admitted to the hospital and the Colo/Rectal surgeon was obliged to treat me as I had already seen him. He was a very skillful surgeon who preferred not to deal with Crohn's pts but here I was.....dying! They put me on TPN for a week as I had severe malnutrition. I ended up with an ileostomy. I found a different Gastroenterologist from a different health system to treat the Crohn's. She tried 3 different oral med and finally settled on the Biologic Stelara. Everything calmed down and the ileostomy was reversed 2 and a half years later. I have continued the Stelara for 7 years! I hope you can find some help before you are also at death's door! Keep writing!

Jump to this post


Replies to "When I showed up in the ER I was admitted to the hospital and the Colo/Rectal..."

I am so sorry you have been through all of that. I have been on an NJ tube before but am worse off and more malnourished than I was then. It is scary to think of a tube again. I can not even get anyone to give me anything. I just keep suffering.
I used to go to Mayo in Jacksonville but they are done with me and will not even speak to me now. So my option is Mayo in Minn as no docs here will touch me and I am way too complex.
It is a scary place to be in when you are under 100 lbs and getting no nutrition.
My fear is wasting my time and money going there for nothing. TY again and hope you are better now and getting great care!