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DiscussionHave nonepileptic seizures/psychogenic nonepileptic seizures (PNES)?
Epilepsy & Seizures | Last Active: Sep 3 7:06am | Replies (63)Comment receiving replies
Replies to "Hi. First time poster, long time lurker.I had my first seizure in March, now another last..."
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Hi @voiperhana
Thank you for sharing your story and welcome to our group!
Dealing with seizures, either from PNES (Psychogenic Non-Epileptic Seizures) or epilepsy, is challenging.
While my seizures are related to epilepsy, I've learned a bit about PNES through our group discussions, including a recent thread that might be helpful to you:
Epilepsy or PNES seizures?
https://connect.mayoclinic.org/discussion/epilepsy-or-pnes-seizures/
What you're describing - seizures with clean neurological tests but a strong connection to PTSD/C-PTSD - sounds more consistent with PNES. These seizures can look very similar to epileptic ones but aren't caused by abnormal electrical brain activity, which could explain why your EEG, MRI, and other tests came back normal.
If you're comfortable sharing, could you tell us more about what your seizures looked like? Details about movements, duration, or any warning signs you noticed might help others in the group who have similar experiences share what's worked for them.
Chris
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