← Return to Have nonepileptic seizures/psychogenic nonepileptic seizures (PNES)?

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Hi. First time poster, long time lurker.I had my first seizure in March, now another last saturday. I`m 43 years old, never had any seizures in my life before this.There is no epilepsy in my family as far as I was able to research and ask my relatives. I also had an EEG, MRI`s, CT-scan, X-rays taken and blood tests, all came out clean and everything was fine in the scans.My therapist thinks this is related to my ptsd - most likely c-ptsd, but it´s not yet a diagnose where I`m from. Meaning that it´s a difficult case of ptsd that requires treatment, psychotherapy and medication. I`m on Tramadol, Pregabalin and Xanax, the medication has been same for 8 years now with no problems whatsoever. With the meds and therapy I have been able to stabilize my life and get some control to the symptoms, all in all my life has gotten better and easier. And now, out of nowhere I get seizures with absolutely no reason other than ptsd.So my question is, are there others with this kind of violent symptoms of ptsd? If so, what has helped you? I would be grateful for any tips or advice, I would just want to live my life and try to make it better day by day, so I could enjoy life for once, perhaps try to get a part time job and a relationship and so forth.Thank you, have a good one and stay safe out there.

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Replies to "Hi. First time poster, long time lurker.I had my first seizure in March, now another last..."

Hi @voiperhana
Thank you for sharing your story and welcome to our group!
Dealing with seizures, either from PNES (Psychogenic Non-Epileptic Seizures) or epilepsy, is challenging.
While my seizures are related to epilepsy, I've learned a bit about PNES through our group discussions, including a recent thread that might be helpful to you:
Epilepsy or PNES seizures?
https://connect.mayoclinic.org/discussion/epilepsy-or-pnes-seizures/
What you're describing - seizures with clean neurological tests but a strong connection to PTSD/C-PTSD - sounds more consistent with PNES. These seizures can look very similar to epileptic ones but aren't caused by abnormal electrical brain activity, which could explain why your EEG, MRI, and other tests came back normal.
If you're comfortable sharing, could you tell us more about what your seizures looked like? Details about movements, duration, or any warning signs you noticed might help others in the group who have similar experiences share what's worked for them.
Chris