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Polymyalgia rheumatica: Any thoughts on my taper plan?
Polymyalgia Rheumatica (PMR) | Last Active: Aug 8 6:27pm | Replies (57)Comment receiving replies
Thank you for those insights. My doctor is going to retest the sed rate and CRP on Friday., and probably run some more tests. Between your test times had your symptoms gotten worse, better or stayed the same? I would suspect if your inflammatory labs went up that your symptoms were persisting.
I am slightly better after this week’s PT, she did the dry needling in my piriformis muscles but still very sore in glutes. Still far from where I want to be. I am taking Advil daily for now.
Replies to "Thank you for those insights. My doctor is going to retest the sed rate and CRP..."
I slowly deteriorated until I saw the rheumatologist, about 6 months after the referral was made. I stayed on a low inflammation diet (ate so many blueberries that my urine turned pink), went to PT and had a PT who was perfect- familiar with my local Ys and worked with me to jave a complementary gym program going. But I was rather severely affected by late summer....PT told me "At XYZ( my favorite Y branch, and is also a medical fitness facility with an amazing pool), the parking is not close. There will be days when all you can do is get there, walk in the building with your bag, and turn around, walk back, drive home. I'm going to count those days as a Win." And he was right. Some days I could barely walk into PT with my cane.
I also took Turmeric and Tylenol. It was really rough.
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Once I got on Prednisone my Sed rate and C reactive protein were excellent. I am currently on 2 1/4 mg of Prednisone down from 30 mg. Close to two years now. Little twinges but hardly any pain. Best of luck to you, my friend.