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NET tumor of pancreas (1 cm) diagnosed

Neuroendocrine Tumors (NETs) | Last Active: Jul 28 7:48pm | Replies (52)

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Profile picture for lanamarie @lanamarie

Thank you for your information of how your PNET was handled. While I am sure surgery was a bit scary, it also must have given you a sense of relief, knowing it is no longer festering inside you. (Maybe "festering" is a bit too graphic, but it is how I feel about any cancer. It is just bubbling, waiting to pop and send it's contents throughout your body.) I have two days of testing at Mayo in Rochester next week. I am hopeful that the tumor is still small but also know they will refuse to remove it. If the doctors there decide to change me to a yearly check, I will be looking elsewhere. Mayo is a fantastic facility, but they are not without error. I have gone to an Internal Medicine Physician at Mayo for five years because I also have SIBO (Small Intestinal Bacterial Overgrowth). He had me tested yearly. However, when I tried to reach him in October, after my multiple pulmonary embolisms, I was told he was NOT my primary physician and I would have to start the process of becoming a patient of Mayo all over again and would not be guaranteed the doctor I have seen for years. This makes absolutely no sense to me and has further engrained in me that I am simply a case number and not a person who has concerns which would help through some continuity. Sorry, just my beef with a highly recognized institution that prides itself on patient care!

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Replies to "Thank you for your information of how your PNET was handled. While I am sure surgery..."

Oh I agree nothing is infallible. Sorry to hear about your experience at the Mayo. I only went for an opinion. I came home and did it here. And yes I’m very glad now that I’ve done the surgery. Tho don’t know yet any treatment needed now. That’s my next appt. How do you know they will refuse to remove your tumour?? I wish you all the best.

Did your Internal Medicine doctor move onto something else?