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DiscussionHas anyone experienced jolting pain, spasms/and numbness in their legs
Polymyalgia Rheumatica (PMR) | Last Active: Jul 23 11:54am | Replies (16)Comment receiving replies
Replies to "Thanks for this additional information. Did you have a different blood work up that discovered this?"
I had standard CBC with differential over the years with many occasions of high eosinophils. Chronic Sinusitis which became autoimmune. Never could find a trigger after years of allergy shots and lots of episodes of prednisone and sinus infections and two sinus surgeries.
It progressed to asthma like symptoms, controlled by Advair inhaler, and finally the pain similar to PMR and the surging pain from groin to foot leaving me numb in the foot and ankle. I was put on prednisone 40 mg in the ER, lowered to 20 mg which did not mask the pain or numbness, and sent to multiple doctors for further evaluation. Took over two months to get in to see a rheumatologist who happened to have a doctor friend who was a specialist in eosinophilia. He recognized the total presentation as EGPA, formerly called Churgg Strauss disease. I was put on Nucala, a biologic which targets eosinophils ( they are a normal blood cell which in my case went autoimmune and attacked me instead of their intended targets).
Very long story , but I am very fortunate that I have done very well on Nucala, and only have sinusitis as a remaining intermittent issue.
You may not have any of these issues, but I felt that the numbness warranted asking about EGPA. It is very rare and most doctors only saw it in med school, so easily overlooked.
Best of luck and I hope to hear of your success in treatment soon, whatever the cause.
Keep calm, ask questions, and carry on!
MTH13