Hello @dchance1,

I see that your procedure to remove the NET will be on Aug. 8, just a few days from now. You asked if anyone had a NETs removed, and it never came back. I've had three NETs removed from the duodenal bulb. It didn't appear to be metastasized as all three surgeries were in the same location. The third surgery was done at a university medical center. It was an outpatient procedure, and they used a heat procedure. As NETs tend to be very small cells, it was felt that in the previous open (invasive) surgeries that there might have been some small cells that weren't removed.

My surgeries were several years apart, 2003, 2005 and then again in 2016. Everyone's experience with NETs is quite different so it is difficult to make assumptions based on another person's experience.

Will you post again after August 8 (and of course before then if you have any questions)?

Hello how are you? My wife had one located removed in March 2024, until the last check it was stable without recurrence, now this month she has control again, so praying that everything stays the same.

I wish you good luck for Friday.

I apologize for not responding earlier. I was waiting to hear maybe where your tumor is. I had 2 renal cell carcinoma removed from my left kidney last October. They initially thought total nephrectomy of the kidney, but surgeon called weekend before we were to fly out (to Mayo Rochester) & said he believed he had a 95% chance of saving my kidney. And he did! I have 90% of my kidney left, have been in for checks 3 mos after, 6 mos after and then since everything looked so good, they let me go 6 mos. So I'll see them for CT checks again in Oct. I won't lie to you; open kidney surgery took a good 2-3 mos of recuperating to the point I could drive, sneeze, pick up 10#+, etc. But it's worth it to have the 2 malignancies evicted! They did find a nodule in my right lung 3 mos after my surgery, but so far it's remained stable. Prayers for your Aug 8 surgery. It will go well; you'll look back on it as a helluva adventure, and a sense of relief. Sending hugs!

Wishing you good luck! I’ve had 2 colon resections; you’ll be surprised how much better you feel & how fast you recover! Start walking as soon as you can. I had to have a bowel movement before I could go home, walking & moving helped. Check in when you’re able & let us know how it goes.