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Anyone have cancer with unknown primary?

Cancer | Last Active: Oct 23 9:04pm | Replies (216)

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I’m 71 F and awaiting my first oncology appointment. I’ve had CT & PET scans of my enlarged lymph node in my neck. Finally had surgery to remove it and do a second biopsy on it. Positive for metastatic p16+ squamous cell carcinoma, strong pancytokeratin and p40 positivity. All tests have shown a primary lesion is not identified. Only the lymph node lit up in the PET. So far my ENT has said it has to be throat, tonsils, or back of tongue. He also mentioned, as someone else said, there is a possibility that my body has gotten rid of it or it is just cells so small they are not showing up.

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Replies to "I’m 71 F and awaiting my first oncology appointment. I’ve had CT & PET scans of..."

I have squamous cell carcinoma on the right side of my neck. They could not find my primary through the scans and biopsies either. In March I had a 7.5-hour surgery. They found it. It was very small spot on the back of my tongue. They removed it and 27 lymph nodes and 4 were cancerous, my tonsils, and several teeth. I finished radiation the end of May. My Dr. said that it wouldn't just go away.

@judiroe, how did your oncology appointment go? Do you have a treatment plan?