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Gastroparesis with severe symptoms!

Digestive Health | Last Active: 20 hours ago | Replies (692)

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Profile picture for Janell, Volunteer Mentor @jlharsh

Hi @jc76.

I was reading just today about a pacemaker for the gut. What an interesting topic!

I am not sure where your wife is with testing at Mayo. They may be just the place to answer your questions. A referral to Dr. Oblizajek sounds like it he may be a good option.

“Dr. Oblizajek's clinical expertise is in general gastroenterology and gastrointestinal motility including gastroparesis, functional dyspepsia, chronic constipation, diarrhea, irritable bowel syndrome and other disorders of gut-brain interaction. His research interests involve the intersection of bioelectronic medicine with gastrointestinal symptom diagnostics and management.”
https://www.mayoclinic.org/biographies/oblizajek-nicholas-r-m-d/bio-20550222
What the result of your wife’s testing, has their been follow up? Dr. Oblizajek is located in Rochester and I believe you are in Florida? isn’t If you don’t go the referral route, perhaps you could request an appointment for a virtual consultation with him. http://mayocl.in/1mtmR63

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Replies to "Hi @jc76. I was reading just today about a pacemaker for the gut. What an interesting..."

@jlharsh
Very helpful will read the link and share with wife. Yes we are at Mayo Jacksonville.

It seems we get more and more test and get more pills. The main issue now with dumping and or constipation. Both these cause real issues with her diabetes.

I had read somewhere probably on Mayo newsletter about the pace maker and mentioned it to her so we could move away from so many pills. I think she said she read something too as she mentioned having to change the battery out once a year.

The more serious problem with this is that her diabetes caused damage to a nerve in the left eye. Prism classes did not work so surgery was scheduled. However had to be cancelled as her A1C was 9 and had to be under 8 for them to do surgery.

But we can't control her digestion so that her insulin works from her auto pump based on he stomach and digestive system putting that food into her body. So we get wild swings in her glucose and I mean wild swings. Her highs can go up 500 and her lows down in 30s. Many times I have had to give her a glucose shot as in coma. We purchased a device where that we use both in bedroom and living room that gives me a digital readout of her glucose level. I can then wake her up or advise her even though her device would be screamiing at her also. Probelm is when you glucose gets so low it is like being drunk and you ability to do anything for yourself.

I am going to provide your information here and she can get with her gastro doctors. She has two. One is general and the other a surgeon (who did 3 surgeries, one heinal hernia, othes to improve stomach).

I am not opposed to flying to Rochester to get the implant if it will help her get the surgery she needs and back to somewhat again being able to have a decent life style. I am getting use ot her wearing a patch over one eye as she developed double vision about 6 months ago.