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Weaning off keppra protocol?

Epilepsy & Seizures | Last Active: Jul 26 7:36am | Replies (19)

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Profile picture for r0bert @r0bert

After 50 years on the meds, I'm better now and decided to ween off the meds. VERY slowly. I've been tapering down for 2 years! Am down from 1800 mgs of epilepsy meds daily, to 60 mg (6ml) per day. Have never felt better. The Keppra held on tight and wouldn't let me off of my 500s. Even after I cut them in half to 250. Dogs and cats can get 100 mgs at Chewey for $1 per. I'm not looking for the highest pet prices I can find. Doc finally prescribed me 100mg liquid form at a very reasonable (human) price. After I got used to the extra work I love it. Now I can ween all the way down. Next week I'll go down to 50mg(5ml), etc. The thing with me was that I don't need the meds anymore. That's why I've worked so hard to ween off them.

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Replies to "After 50 years on the meds, I'm better now and decided to ween off the meds...."

Hi, @r0bert and welcome to Mayo Clinic Connect. That is a very long time to have been on your meds! Good to hear you've never felt better.

You mentioned weaning off over 2 years. Sounds like perhaps your doctor gave you this protocol for weaning? You mentioned levetiracetam (Keppra) held on tight and wouldn't let you off of your 500s. What happened when you tried to do this?