← Return to Initial imaging and tests; what to expect after initial NETs diagnosis
DiscussionInitial imaging and tests; what to expect after initial NETs diagnosis
Neuroendocrine Tumors (NETs) | Last Active: Jul 27 6:12pm | Replies (13)Comment receiving replies
Replies to "Interesting. I thought that the Mayo folks would probably order whatever scans they thought would be..."
My “guess” on why the PET scan wasn’t ordered is due to it being stage 1/small size & your age. Plus, insurance companies will deny any procedure they can so it’s cheaper for them. The Dr also needs to submit thorough documentation. My insurance company denied my first PET scan & Drs appeal was also denied. When they finally approved it, it had metastasized to liver, appendix, peritoneal lining, diaphragm & upper/lower colon, stage 2-3. I ended up having a 2nd huge, painful, cytoreductive/debulking surgery. Once I retired & Medicare was primary, I’ve had no issues getting PET scans approved. That is why I preach to be your own best advocate & push for the tests you want/need.