These posts and people sharing their knowledge of this disease and treatments is very helpful! I get a little confused, however, wondering if I need to be more proactive. Though things are going well now, I want them to continue going well and want to be around for a long time. I am 71, until 6 months ago, I was healthy and fit - hiked the Grand Canyon last year, and other places out here in the southwest whenever possible. Diagnosed with Stage 1, head of pancreas, last January. Had 5 rounds of Fulfirinox, then Whipple, recovered from this without any unexpected problems, now back for 7 more rounds of the Fulfirinox. Surgeon was very happy with the surgery, clear margins, mass not attached to anything besides the pancreas, nothing seen anywhere internally, and testing of lymph nodes, no CA there either. I guess my biggest problem has been eating and keeping weight on. Everything tastes so funny, and not like I expect it to. But I am eating! I should be gaining, right now staying steady, so it could be worse, but I don’t have an extra ounce on me - like just about everyone dealing with this.
I guess if things start going south, I will look into the many recommendations here - I have not done much, no second opinions (I liked the surgeon, all he does is the Whipple procedure, and our hospital system here - UC Health, Colorado - though not Mayo or any other highly touted medical organization - seems to know what they’re doing). But then I worry that I am just not informed enough and should be looking into options (immunotherapy? Clinical trials?) and doing more.
Not having any problems now, maybe I need to relax and research more if/when something concerning occurs. Thanks again, for all the info and thoughts fighting this disease.