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Glioblastoma: Anyone else struggle with being a caretaker?

Brain Tumor | Last Active: Aug 21 12:43pm | Replies (20)

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Profile picture for Randy Shields @randallshields56

Welcome to the group, I liked what advice you put out there. I was one
step down from glioblastoma with my tumor. Have my daughter taking me to
appointments, a caregiver 4 days a week. Had multiple seizures and still
can for the most part take care of myself. Can't drive for another year,
had a lot of what your husband has already gone through. I might be able to
answer a few questions you might have. This has been quite the challenge
but I am a fighter, credit my survival to my daughter. 11 months no
seizures then back to start again. Reminds me of 50 first dates but with a
lot more work coming back. This time we're going slower on exercises. Next
week go back to get 3 month scanning for cancer. Last tests had me
cancer free. Sorry for the book . Hope things get better for you both 🙏

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Replies to "Welcome to the group, I liked what advice you put out there. I was one step..."

I appreciate hearing from you and are hopeful you remain cancer free. You have already gone through so much and I believe the fact that you are a fighter will help. And you are blessed with your caretaker daughter. My husband is struggling now with more and more symptoms but is still able to do a few things. I'd be interested in hearing how you think and react to what you are going through. As a caregiver I can only imagine how I would react if I was the person dealing with cancer. I find that the patient and the caregiver have very different thoughts running through their head. If I could only understand more clearly what a person with cancer thinks.