What surgery did you have; a whipple or just a removal of the tumor? Where was the surgery done? Was it at a facility that has a lot of experience with this type of tumor?

Thank you for your information of how your PNET was handled. While I am sure surgery was a bit scary, it also must have given you a sense of relief, knowing it is no longer festering inside you. (Maybe "festering" is a bit too graphic, but it is how I feel about any cancer. It is just bubbling, waiting to pop and send it's contents throughout your body.) I have two days of testing at Mayo in Rochester next week. I am hopeful that the tumor is still small but also know they will refuse to remove it. If the doctors there decide to change me to a yearly check, I will be looking elsewhere. Mayo is a fantastic facility, but they are not without error. I have gone to an Internal Medicine Physician at Mayo for five years because I also have SIBO (Small Intestinal Bacterial Overgrowth). He had me tested yearly. However, when I tried to reach him in October, after my multiple pulmonary embolisms, I was told he was NOT my primary physician and I would have to start the process of becoming a patient of Mayo all over again and would not be guaranteed the doctor I have seen for years. This makes absolutely no sense to me and has further engrained in me that I am simply a case number and not a person who has concerns which would help through some continuity. Sorry, just my beef with a highly recognized institution that prides itself on patient care!