← Return to Ultra-high-risk multiple myeloma: My post-transplant update

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1st time post-Diagnosed in December 2019 at age 63, revlimid, velcade, steroid worked to get numbers down until stem cell transplant (delayed because of covid)at mayo in Rochester Mn. July 2020. Revelimid work great for 6 months of maintenance then rash came on so switched me to Velcade for rest of maintenance. Lasted 2 yrs. without any drugs and in March 2025 it came back so back at it. Basically Dex, Kyprolis, Darzalex Faspro weekly. Numbers look great after 15 weeks hoping for maintenance soon. We’re in Iowa 6 months then New Smyrna Beach Fl for 6…lucky to enjoy the outdoors year around. I’ve read people with this cancer have one thing in common-Bad luck.
Good luck and take care.

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Replies to "1st time post-Diagnosed in December 2019 at age 63, revlimid, velcade, steroid worked to get numbers..."

Thank you @ rjsmtz.
May I ask if you had high risk MM and how long did you receive maintenance therapy ?

Hi @rjsmtz. Wanted to officially welcome you to Connect. I see you’ve been a member since last year and this is your first time posting! Happy to see you here!

Thank you for sharing your experience with MM, and having a ASCT which kept you in remission for several years. It’s encouraging to see that your labs are looking good again with your current treatment. Did your doctor suggest another ASCT or will you be able to just be on a maintenance med again such as Velcade?