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CMT (Charcot-Marie-Tooth Disease) - Genetic Testing

Neuropathy | Last Active: Jul 23 9:35am | Replies (6)

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Who ordered your genetic test and how long have you had your symptoms? Did either parent have it? Where is your pain? What is your plan for future treatment?

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Replies to "Who ordered your genetic test and how long have you had your symptoms? Did either parent..."

It started along time ago just a little numbness in my toes and then my fingers, maybe around 2018. I am 79 years old. I don’t ever remember my parents mentioning it or dealing with these problems. Don’t mean they didn’t have it, they were tough people back then, never complained about anything.
Right now I am having a lot of pain and numbness going up to my knees and from my fingers to my elbows.
The pain is sickening and I take Hydrocodone (3 /day) and Gabapentin (1200 mg/day).
This medicine only gives me some relief, not for very long.
I paid for the genetic testing myself.
I guess the future is to try and deal with it the best I can. Good shoes for balance, and be very careful while walking around. If I could get rid of this sick feeling I have, I believe I can handle the numbness somewhat.
I hope this helps.