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Giant Cell Arteritis Diagnosis

Polymyalgia Rheumatica (PMR) | Last Active: Mar 31 7:58pm | Replies (104)

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Profile picture for hoosierlarry @hoosierlarry

Wow! Very similar to my situation. Same symptoms in mid April except no vision loss as I guess I caught it early. Biopsy May 21 confirmed GCA,
Started at 40 mg of Prednisone that increased blood pressure into the 140/85 range. Now down to 10 mg and BP has moved closer to normal. Plan is to go to 7.5 mg in three weeks and start Acterma infusions in mid August.
I am exercising 90 minutes a day ( weights, spin bike, elliptical, treadmill) with no pain of any kind.
The Acterna side effect list has me a bit nervous. No thrilled with the RA practice here as always seems reactive versus proactive. Going to Mayo Clinic in Jacksonville next week for consultation and opinion.
My other bloodwork is normal. Northing out of normal range. Seems like I may have panicked initially when I told RA doc here that I wanted off of Prednisone as soon as possible. Seems like there are folks who have been on it for years and years that as still walking around and living a decent life.
I stated on a few other posts it seems impossible to predict anything since every person reacts differently to the meds and side effects.
Hope you eye issue clears up.

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Replies to "Wow! Very similar to my situation. Same symptoms in mid April except no vision loss as..."

Thank you for your last line! I appreciate it! And all of your information was helpful, thank you for that as well! I have to ask, with the “hoosierlarry”… are you from Indiana? I am originally, born and raised there. 😊
Good luck with the Mayo Clinic in Jacksonville. It would be interesting to hear what they say.
Thanks for replying!