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Replies to "@mmmerrimac: This Small Fiber Neuropathy lecture video you shared with us was fantastic. Yes, a little..."
Chronic Pain | Last Active: Jul 23 6:09pm | Replies (104)
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Replies to "@mmmerrimac: This Small Fiber Neuropathy lecture video you shared with us was fantastic. Yes, a little..."
I love that video! Dr. Oaklander is such a good presenter. I've watched it more than once, and even though I don't understand all the scientific parts, I've learned enough from it to get a sense of how SFN affects my whole body. It's given me a foundation to build on as I work with my doctors to get and accurate diagnosis for all my symptoms. You're right about the possibility of multiple autoimmune diagnoses. That's what I'm trying to nail down now. So much time has been wasted by doctors who can't get past the anxiety as the cause of my symptoms rather than the other way around.
I second your advice about arming ourselves with new knowledge. Doctors don't always have time to discuss the details with their patients. One of the symptoms I'm dealing with is mild cognitive impairment, which makes it hard for me to remember everything I want to ask the doctor about when I have appointments. I now rely on lists/charts/pertinent medical records to jog my memory.
BTW, have you tried low-dose naltrexone for pain? It doesn't work for everyone, but I've had great luck with it.